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Brenton's Story

An Autobiographical Account of One Young Man's Struggle with Muscular Dystrophy

Volume editor John Fitzgerald
Format: Paperback
Publisher: The Children's Society, London, United Kingdom
Published: 2nd May 1996
Dimensions: w 139mm h 216mm
ISBN-10: 0907324843
ISBN-13: 9780907324843
Barcode No: 9780907324843
At the age of seven, Brenton Wilson discovered he was suffering from the life-threatening disease, muscular dystrophy. In this account of his life in Australia, Brenton portrays how the illness affected him and how he coped with it. In particular, his ongoing participation in sport and exercise helped him in a determined effort to fight the disease. Through his descriptions of life in a residential home, and of marriage and the difficulties this brought with it, Brenton expresses needs and feelings familiar to everyone. He also reveals the distress and frustration he felt over important decisions made about his care arrangements. Until his death at the age of 22, Brenton believed he had been robbed of living time on account of decisions made about his care. The book illustrates the importance of listening to children and young people and taking their views into consideration.

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